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Shawana Dion S.

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1 reviews

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

Ever since we found out 2 years ago that our son had this disease called Barth syndrome, this organization accepted us with open arms and has let us know everyday that we are not alone in this fight. This organization has done everything if not more to try and find a cure and is still searching. This organization needs more help in research to carry on this search for the cure. This disease is very rare and deadly, so please help this organization. They are worth every penny. Thank you,

Role:  General Member of the Public