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1 reviews

Review for Congenital Heart Defects Families Association, Kansas City, MO, USA

Rating: 5 stars  

Finding out that your child had a heart defect can be very isolating and scary. Being able to connect with other parents who have been there as well as the care packages when your child is having surgery is such a comfort. We live in central Kansas and that type of support isn't available here, but with the KC Groups help, we now have the benefit of support in our area as well as support in the KC When we are there.

I've personally experienced the results of this organization in...

Helps connect with other parents who have been there.

If I had to make changes to this organization, I would...

More time and money to do more of the wonderful things we do for our kids, something we all need.

What I've enjoyed the most about my experience with this nonprofit is...

connecting with other parents.

The kinds of staff and volunteers that I met were...

All wonderful parents who really care about our families.

If this organization had 10 million bucks, it could...

Lead the way to beating CHD's

Ways to make it better...

I had only found them sooner!!! I spent the first 8 months on my own!

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?


Role:  Volunteer & Support Group Coordinator for Central Kansas & CHD Mom.