My Nonprofit Reviews

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2 reviews

Review for Parkinson Research Foundation Inc, Sarasota, FL, USA

Rating: 2 stars  

My Story by Jeanie

My grandmother Ruth, a multi charitable humanitarian, is peacefully at rest, after battling Parkinson’s disease (PD) like a warrior until her last breath. The moment she passed my heart was torn apart, one side filled with heartache, while the other died with her. Death leaves a heartache no one can heal, yet love leaves a memory no one can steal.

You taught me that the things that hurt you the most, teach us the greatest lessons in life. Remembering you is easy, I do it every day, but missing you is such heartache, that I wish would go away. I am her first born granddaughter, who will continue her legacy of true love for others through humanitarian efforts.

For more than two decades Parkinson's occupied her nervous system, affecting movement, balance and cognition. She refused to allow the disease to affect any part of her daily routine. My grandmother strongly believed in the power of prayer, the lord and the strength of the words in which we speak into the universe. Her cognitive ability, was a gold mine. She continued to be the true matriarch of our family, not allowing medications to affect her thought process, ability to make decisions or her personality.

Every day, for 92 years, she woke up with her daily affirmations, showered, pick out what she wanted to wear, groomed herself, with lipstick and blush and headed the kitchen table for breakfast.

Afterwards, she would sit in her back room, which was a place of peace for her, as the sun shined through the windows of the house. She read her favorite books, listened to music and would pray, as her nursing assistant and pastor would pray together for the healing of her family, friends and those in need. The days had lessened, and ceased, as she tried to write in her journal every day, but the internal & hand tremors, became to tiresome.

Once Hospice of New York began assisting our family, the simplest tasks such as speaking, eating or understanding words became impossible. She was in constant state of pain, paranoia, while experiencing signs of dementia, and hallucinations. She was unable to identify reality vs. visions, dreams, and/ or hallucinations.

But she fought fight like a warrior, refusing to give up. Hospice doctors and nurses told us they hadn’t seen a woman fight for six weeks, three of them with no food or liquids. Sadly, she didn't want to leave me, as our bond, was unexplainable, as I could feel her call for me if I was not around.

My grandmother was a woman of extreme strength, courage and love who may be gone from our sight, but is at peace. She held herself with dignity, pride and grace that shines through all of us who were lucky enough to be a part of her loving family. Thank for teaching me not about the love of power, but about the POWER OF LOVE!

If I had to make changes to this organization, I would...

I provided the PDS ample time, after a charitable donation made by my company, the PD blue awareness bracelets and “Care Kits” be sent to me. I received the shipment after the service & funeral. I was disappointed and disgusted as I was told by Customer Service that this was being shipped from Florida, and I was in NY. This is and was an excuse, and should have been overnighted at my request. Over 300 people attended my grandmothers memorial as she was a humanitarian of all different charity.

Role:  Professional with expertise in this field

Review for American Parkinson Disease Association, Staten Island, NY, USA

Rating: 3 stars

Role:  Professional with expertise in this field