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shellbell41

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1 reviews

Review for Neuroendocrine Cancer Awareness Network Inc, Fort Mill, SC, USA

Rating: 5 stars  

I have been a nurse for 26 years and was diagnosed with Pancreatic Neuroendocrine Tumor in December of 2010. I had been getting progressively sicker over a period of years, with bizarre symptoms, flushing, rash that would lead to anaphylaxis. I was down to 85 pounds and nearly died. I had surgery at MD Anderson Cancer center in February of 2011. I was told NOTHING about my tumor, a PNET and the surgeon literally told me that “if your cancer comes back, we take it out”. No other info. 5 years later, after being told by a local oncologist I didn’t need any follow up, I was diagnosed with metastatic disease to my liver and had surgery to remove one lobe. Again I was told nothing about my type of cancer, and was told by an Oncologist the I was “way overreacting” to my new diagnosis when I was crying and upset. Again, I was told nothing about my cancer, and continued to fight these episodes of flushing, rash and fighting off anaphylaxis. My Dr ignored all of my symptoms, and did no further testing. Finally, a family friend who is a radiologist told me that my cancer was rare, and two weeeks ago I googled NETS and found a support site. I was finding information everywhere and literally stayed up the entire night on the internet researching my disease. I found Maryann’s name mentioned several times in patient forums, and everyone said to call her. I reached out to Maryann yesterday (July 13th) through Facebook. She said to call her the next day (today). I can honestly say, through the years rolling down my face, that this woman, a NET patient herself who has devoted her life to this disease is saving my life. At 2:30 in the morning, having no knowledge of any NET specialists in New Mexico, she had a name of a Dr who specializes in this disease, the information that the scan I have needed for years just started here, and I called and had an appointment with this new NET specialist, Dr, Heloisa Soares at UNM cancer center (where I had surgery for metastatic disease in 2016) in one week. I have been suffering with undiagnosed symptoms for years, and in a few hours I was on my way to finally getting the treatment I have needed for years. Maryann and her dedication to this rare cancer is saving my life. I was so sick and so tired of fighting this unknown disease for so many years that last year I was going to take my life. I am grateful that because of my two children I did not. I will dedicate the rest of my life to spreading the word about this cancer and helping and advocating in any way I can any other person diagnosed with this disease. I will be forever indebted to this organization and it’s founder for giving me expert Information and the relief that I have will finally have the knowledge and treatment I need. I say a heartfelt thank you to Maryann and all the people involved in this great organization. I only wish I had found them years ago.

Role:  Client Served

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