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amerspirit

223 profile views
1 reviews

Review for In Need of Diagnosis, Orlando, FL, USA

Rating: 5 stars  

I have sickness called immune disease disorder which I have been taken care by specialist. However, I have unknown disease which I have not been able to find out through regular doctors because everythime I have been suffering with many strange physical symptom happened to my body such as nose bleeding, rectal bleeding, sudden fatigue, paralsis of my arms and the most strange happening was and still going on is my belly suddenly blown up like 10-month pregnant woman ready to give birth and suddenly disappear. Because of all these symptoms, I have been seeing so many doctors and lab testing and so on, no doctors can tell me what was wrong with me. Some doctors think I may have mental problems. But, I had these problems everyday and no where to turn for help, I tried contact media outlet for help and contacted every media organization there was. Luckly, I have been contacted by ABC News.com and I was interviewed by the ABC and my story was in ABC News.com in internet news see at http://a.abcnews.com/Health/MindMoodNews/story?id=4403716&page=1 After the story went out, I was referred to INOD for help and I did. Since March of 2008, I was in contact with INOD and I could not tell you how wonerful this organization was. First of all, I found someone or an organization who I understood what I have been going through. I have been contacted by Marianne Genetti whom provide me such wonderful support and tried to direct me to various medical organization or doctors who may help me or guide me through right directions to find out what was going on with my unknown physical symptoms. In dealing with Marianne I have gained confidance and there are people who suffer like me with unknown symtoms. Although, I am still going to doctors and hospitals they do not know what cause my physical symptoms. Yet through Marianne and INOD, I konw and I hope some day it will be found the casue and able to cure me from this miserable suffering I am having everyday. Because of INOD, I have hope. Please keep up the good work. I can not thank you enough for all you have done for me. Sincerely, Jane

I've personally experienced the results of this organization in...

My case was submitted to NIH for Undiagnosed Experimental Program and refered to UCLA HAE attack trial program with help from INOD. And other possible trials suggest by INOD.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  Client Served & I received counseling & information regarding my unknown disease.