My Nonprofit Reviews
Review for Chordoma Foundation, Durham, NC, USA
The Chordoma Foundation information saved my life. I was misdiagnosed with a pilonidal cyst in July 2017. My local surgeon, not realizing what it was, lanced my 'cyst' twice, then tried removing it with an ordinary open surgery. Thankfully he had enough sense to stop and biopsy the mass. His la di dah attitude was even further apparent when he casually tossed a sheet of paper with information from Google at me in response to my question about the biopsy results.
Thank God the Chordoma Foundation was the top entry on that sheet. As my wife began researching the information the Chordoma Foundation had available, only then did we realize how serious the situation was.
The Chordoma Foundation's expert doctor lists helped me get treatment opinions and options from doctors all over the US, ultimately landing me in Boston for care.
Their patient connections helped me contact and communicate with others around the country who encountered this rare form of cancer. That support has been invaluable.
The research efforts spearheaded by the Chordoma Foundation have already found treatment options that didn't exist 10 years ago and new strategies are being developed every day that will help doctor's cure chordoma and that will help treat other types of cancer.