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1 reviews

Review for The Lam Foundation, Cincinnati, OH, USA

Rating: 5 stars  

It is truly remarkable how the human body can continue to keep on going with significantly reduced organ function. With lungs forever damaged from a rare, progressive disease, it is a matter of time when lifestyle must change to accommodate the daily struggle to breathe. Having knowledge that an organization exists that will help with the numerous transitions once being diagnosed with LAM, is a tremendous tool for both health care provider and lay individual alike. With no definitive treatment or known cause, treating a woman with LAM can be quite a challenge for even the most seasoned practitioner. The LAM Foundation offers the most current and updated findings to help steer the patient and physician in the proper direction. A priceless resource that might have never been without the dedication and willpower of it's founders and staff. Dealing with the symptoms of LAM is akin to being in a small boat on a stormy sea; the LAM Foundation provides a beacon and safe harbor for those affected. Great strides have been made in recent years with regards to diagnosis and treatment of LAM. This progress would not be happening without the foundation.

I've personally experienced the results of this organization in... current participation in drug trials and data collection to help find answers and options.

What I've enjoyed the most about my experience with this nonprofit is...

networking and meeting people from all over the world.

The kinds of staff and volunteers that I met were...

Exceptional in every way!

If this organization had 10 million bucks, it could...

Allow those researchers who are waiting in the wings to move forth and give their ideas a go. The pace of educating others on how to diagnose and treat would improve worldwide.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?


Role:  Client Served & I was given contact information by my physician at the time of diagnosis with LAM in 2008. I chose to email for information and got a prompt , supportive response. I began networking with other women with LAM through The Lam Foundation.