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drtaco1

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3 reviews

Review for International Paruresis Association, Inc., Catonsville, MD, USA

Rating: 5 stars  

For people with shy bladder syndrome there is no other organization like IPA. I was at my wits end when I found them. I had struggled for fifty years hiding this affliction with no one to turn to for advice and sharing. Doctors and psychologists don't understand how this works like IPA. The help is there. It's easy and works. I still have paruresis but it doesn't run my life. I don't spend every minute worried about where my next safe opportunity will be.
I can't imagine how my life would look today if I had not found IPA 15 years ago.

Role:  Client Served
 

Review for International Paruresis Association, Inc., Catonsville, MD, USA

Rating: 5 stars  

If only IPA had been around when I was in school! I never used the urinals in grade school, junior high, high school or college! I thought I was the only one in the world who could not do this thing that everyone else could do. It seemed so simple for them. Impossible for me.
The harder I tried, the worse it got. I snuck around. I went in alleys, bushes, held it in for hours and hours. Never told a soul.
Until I got into the long term relationship that I am still in and found some understanding. But that didn't change the fact that I could not pee at the movies .
Then I Googled "pee shy" late one night about eight years ago and up popped the IPA website! I went to the first local meeting that I could get to. I met people who I could talk to about paruresis (it had a name!).
The next meeting I made some progress and started to see that I could get better.
So I signed up for the very next workshop and flew from LAX to Detroit! The best thing Id ever done for my own well being. Before leaving Detroit and saying goodbye to my new friends I peed at the urinals at Comerica Stadium during a Tigers game!
Since then I've used the troughs at Dodger Stadium! That's right! I sometimes still have issues but it doesn't stop me from doing anything or going anywhere anymore. And it never will again!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served
 

Review for International Paruresis Association, Inc., Catonsville, MD, USA

Rating: 5 stars  

Suffered with shy bladder syndrome for over 50 yrs before finding this fantastic organiza-tion. Went to local support group a couple of times and then a workshop. Eventually went to four workshops and have lead supports groups for three years. Where this phobia used to run my life and was sometimes a nightmare of searching for a safe place to pee, I am now free to go and do whatever I want. I use urinals at ball parks and gyms and never turn down invitations just because I am not famil-iar with the restroom situations. Life is much more fun. IPA is a great organization. In fact, it is a life saver that is virtually unknown by the public at large.

I've personally experienced the results of this organization in...

terms of improving the quality of my life and the lives of others both directly and indirectly. When one person stops having to hide a secret from their partner or spouse their entire relationship can change for the better.

If I had to make changes to this organization, I would...

make it more available to people who don't know about it. Shy bladder syndrome is a problem that most people don't understand or think is just a joke. It can limit a person's life to the point where they are actually housebound.

What I've enjoyed the most about my experience with this nonprofit is...

meeting people who share this phobia and have worked through the fear and gotten to the other side of it and helped me to get to the other side as well.

The kinds of staff and volunteers that I met were...

kind and friendly and open hearted. No one ever was doing this for their own ego.

If this organization had 10 million bucks, it could...

GET THE WORD OUT!!

Ways to make it better...

I could have spent more time with it. Unfortunately I had to work for a living.

In my opinion, the biggest challenges facing this organization are...

money, money, money and recognition.

One thing I'd also say is that...

Stephen Soifer, the founder, has almost single handedly run this organization for a dozen years with very little money out of his committment to the people who suffer with this phobia. He is a saint.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2009

Role:  Former Volunteer & Support Group Leader in my local area for three years.