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spunkykris

168 profile views
1 reviews

Review for In Need of Diagnosis, Orlando, FL, USA

Rating: 3 stars  

My experience on INOD has been pretty good. I am able to "blog" about my ongoing undiagnosed condition and other members respond with suggestions or offer support. I feel very fortunate that I found this online support group. Knowing I'm not the only one dealing with an undiagnosed condition gives me hope that someone out there can help me.

I've personally experienced the results of this organization in...

the members forums and discussion groups.

If I had to make changes to this organization, I would...

have highly-trained physicians who deal with undiagnosed conditions actually get involved and help members more. Be it with advice or referrals

What I've enjoyed the most about my experience with this nonprofit is...

communicating with other members about my condition.

The kinds of staff and volunteers that I met were...

I did not meet any staff members

If this organization had 10 million bucks, it could...

possibly do more research on undiagnosed conditions or hire physicians to communicate with it's members for for in-depth advice.

Ways to make it better...

I was able to communicate with someone highly trained in diagnosing those with chronic undiagnosed conditions.

In my opinion, the biggest challenges facing this organization are...

the lack of communication from physicians.

One thing I'd also say is that...

I am grateful for INOD because I've met others out there like me and now I don't feel so alone.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  Volunteer & I joined the site for research on my chronix undiagnosed illness.