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1 reviews

Review for APFED, Atlanta, GA, USA

Rating: 5 stars  

Both of my boys were diagnosed with eosinophilic esophagitis in April 2008. APFED's educational pages helped our extended family understand the medical condition and what they could do to support us as we initiated a difficult to maintain treatment plan. I attended APFED's annual patient education conference in July 2009. That weekend was one of the most amazing experiences of my life! Some of the top physicians and researchers in the fields presented information that has enabled me to advocate more effectively for my children's needs. Hearing the stories of other families with similar circumstances helped me feel less alone. I simply cannot imagine how difficult it would be to manage my children's medical needs without APFED!

I've personally experienced the results of this organization in...

Informational materials (web pages, brochures, books, etc.), patient education conferences, development of ICD-9 codes, and the maintenance of a list of physicians self-reporting knowledge of eosinophilic disorders have all positively impacted my family.

What I've enjoyed the most about my experience with this nonprofit is...

meeting and interacting with other eos families.

The kinds of staff and volunteers that I met were...

invested in APFED's mission and the community that it serves.

If this organization had 10 million bucks, it could...

eliminate physical and psychological pain for children through funds dedicated to research, education and advocacy for patients with eosinophilic disorders.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?


Role:  Client Served & I attended the 2009 APFED Patient Conference, and now volunteer as a moderator on the message boards.