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NottyBumbo

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3 reviews

Review for Clubfoot Research Foundation, FRISCO, TX, USA

Rating: 5 stars  

In just the last 2 years alone, Clubfoot Research Foundation has made significant inroads into educating the general pblic AND medical professionals on the truth about living with club feet. I am thrilled to see the committment from this organization maintain an upward trajectory, reaching out to people around the world to build a real base to promote serious research into this life-long condition. Thank them for their excellent work!

Role:  Professional with expertise in this field
 

Review for Clubfoot Research Foundation, FRISCO, TX, USA

Rating: 5 stars  

As someone living with club feet for 65 years, who is also involved in trying to find solutions for adults and teens with the same condition, I have been stupefied that there is so little real research into the long-term impacts of club feet. And then along comes Clubfoot Research Foundation with a plan to change that poor equation into one that actually tackles the subject. Hundreds of thousands of people in the US alone deal with chronic pain every day due to poor outcomes from childhood treatment, so the upside for even base-line research can impact many, many lives. I donated to this Foundation because I know the issues. But I hope to elicit people without CF to come to recognize a reality that they no little about, but almost certainly know of someone who is affected.

Role:  Professional with expertise in this field
 

Review for Clubfoot Research Foundation, FRISCO, TX, USA

Rating: 5 stars  

As someone living with post-club foot syndrome - bilateral - for 65 years, and having treated many others with the same condition, I am so pleased to see the work being done by CRF to advance the research into both causes and treatments for idiopathic and congenital club feet. So little work has been done on the impacts of CF beyond the pediatric years, leaving tens of thousands of people world-wide with no relief for their life-long disability and far too frequently living with chronic pain. I have been involved with seeking answers and better engagement from the medical community, to get acknowledgement from that community that the effects of CF go far beyond the standard pediatric treatments, that those treatments are NOT cures or even corrections, but simply re-configurations of the deformity. They do not address the underlying condition, especially the damage to lower-leg muscle cells and nerves. I applaud the work being done bt the Clubfoot Research Formum, and urge others to donate generously to support real research that can have a lasting impact on those living with this extremely difficult condition.

Role:  Professional with expertise in this field