My Nonprofit Reviews

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1 reviews

Review for Ovarian Cancer Research Fund, Inc., New York, NY, USA

Rating: 5 stars  

Well, where do I begin. Almost 2 years ago I had to run to the emergency room (where I worked too) because I was in excutiating pain from my waist to my breast. It came out of nowhere and blindsided me. After an abundance of tests they found a mass on my left ovary and they found it was spilling fluid outside of my uterus, which they werent sure why, but must have been causing the massive pain. I was sent to Stanford Medical Center and from there they took me to surgery. Apparently the cyst on my left ovary had grown past the size of my uterus and began to spill fluid into my abdominal cavity. I had just had my last son only 2 years before and had a c-section. This had grown rapidly and with a vengince. If it hadnt been for the pain, who knows how long it would have gone on without being detected. I had a chemo port that was put in at the time of surgery, incase I was to have chemo. I was in the hospital for a week, and on the day that I was going home the doctors took out my chemo port because the pathology tests had come out good and only warranted watching. I cant tell you how scary this was for me and my whole family. I was already facing alot of issues at home and this was just one more obsticle. All I can remember worrying about the whole time was what about my kids. I was so upset at the emergency room they had to sedate me. My poor parents stayed with me the whole time and I could see the concern in their eyes, even though they wouldnt let on. I could see my dad try to fight the fear in his eyes. They are my rock. My older son looked after my two smaller sons till I got home and I will never forget the look in my 2 year old eyes as he saw me come through the door. His eyes lite up like a christmas tree, like he saw Santa. I was his gift. My boys were so brave and even though they were scared, they kept each other going. I didnt even know there was a foundation for ocrf until this happened to me. I was watching Regis and Kelly and she did a commercial for Electrolux and they were spreading the word and trying to collect moneys for ocrf. I also learned that there was a color and I never knew that either. I felt rather uninformed. So now I try when I can to let others know that it does exist and it needs to have more recognition. On the electrolux web site they had a email a virtual t-shirt to people to spread the word. So sence I was still recooperating, I sat at the computer and emailed one to everyone I had emails for. I try to keep myself informed and my dad keeps up on all the latest news too... in oct 2010 it will be my 2 year birthday, for being alive. It could have been much worse and I have to be thankful that research is going on so that others, like me, can go on living. OCRF is crutual for everyone... it needs to be recognized as a great cause. Way to go, if it werent for the doctors knowing more about it then they used to, then who knows where I would be today... Im just glad that my children wont have to worry where their mom is, because I am right here. (thank god).

I've personally experienced the results of this organization in...

my own life. If it wasnt for you being there, who knows where I would be. Research is sooo important and others need to hear about it more, just like you hear about breast ca.

If I had to make changes to this organization, I would...

Just that it be more world known. Not everyone knows there is a foundation or color or anything. It needs more publicity.

What I've enjoyed the most about my experience with this nonprofit is...

learning more than I knew to start with.

The kinds of staff and volunteers that I met were...

I have only met on the internet.

If this organization had 10 million bucks, it could...

Do more research to help fight. It might also help out others in need when they are sick and not able to care/support their families.

Ways to make it better...

dont know yet

In my opinion, the biggest challenges facing this organization are...

Publicity, Publicity, Publicity. education to the public.... its the best way.

One thing I'd also say is that...

I love you, and I thank you for being there, even when I didnt know you.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?


Role:  General Member of the Public & SPREAD THE WORD ABOUT THE OCRF.