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nadia3

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1 reviews

Review for National Tay Sachs & Allied Diseases Association Inc, Boston, MA, USA

Rating: 5 stars  

Our son Timo was diagnosed with Tay Sachs disease in October 2009 and at the beginning we seemed to be pretty much alone on our journey. This changed when getting into touch with NTSAD who provided important info materials on the disease and what to expect, home care tips to help and prevent problems and most important of all it helped us to get in touch with other families going through the same. Our NTSAD experience is rewarding and supportive and the people working there are really doing a great job.

I've personally experienced the results of this organization in...

finding a better way to deal with our son's condition by getting top info and by sharing our pain with others

What I've enjoyed the most about my experience with this nonprofit is...

getting to know other families with affected children

The kinds of staff and volunteers that I met were...

competent, efficient and super friendly

If this organization had 10 million bucks, it could...

help with a cure

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Role:  Client Served & I received counseling services.