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Cory G.1

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1 reviews

Review for Cure AHC- Alternating Hemiplegia of Childhood, Rolesville, NC, USA

Rating: 5 stars  

Cure AHC is a much deserved leader in the AHC Community.

They not only provide much needed financial support for those seeking a cure for AHC they also provide much needed mentoring and a community that ensures our child (and us as caregivers) do not have to do it alone.

Since our daughter was diagnosed Cure AHC has assisted us with gaining a better understanding of our daughters condition as well as being an advocate in helping us navigate the hurdles associated with caring for someone with AHC. They have provided mentorship and support for our clinicians and have served as a conduit for them to share information with their peers. They are a truly amazing organization and fill a very critical role in the care for those with AHC.

Thank you Cure AHC for leading the way to a cure, for being our voice, and for making sure our families are provided the knowledge and tools to provide our Heroes the best possible care.

Role:  Client Served