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destroysma

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1 reviews

Review for Hope And Light Foundation, Brookhaven, GA, USA

Rating: 5 stars  

The Hope and Light Foundation is making awesoem strides in changing the way children with Spinal Muscular Atrophy are taken care of medically. Although SMA is the leading genetic killer of children under 2 years of age, many doctors do not know how to take care of infants diagnosed witht his disease. They tell the parents to take them home and love then that they will die before their 1st birthday and there is nothing the parents can do to change that. The Hope and Light Foundation is putting money into education and research. They have helped to fund educational programs that bring top SMa doctors tot he East Coast to help our medical professionals take care of our children at home. They have also given money to research programs to help promote a cure for SMA. The Hope and Light Foundation is a wonderful cause that is moving mountains to help our children.

I've personally experienced the results of this organization in...

The Hope and Light Foundation ran an article about my son on their website and in the e-letter.

What I've enjoyed the most about my experience with this nonprofit is...

their sense of what is important in improving the care of my son and other children who suffer from SMA.

The kinds of staff and volunteers that I met were...

people who knew alot about this disease and how to work together toward a cure.

If this organization had 10 million bucks, it could...

save our children!

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

Role:  General Member of the Public & My son was featured in their online newsletter.