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jamathews47

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3 reviews

Review for The Myositis Association, Alexandria, VA, USA

Rating: 5 stars  

The Myositis Association (TMA) provides an invaluable service to its members. Their Medical Advisory Board is comprised of 23 of the World’s leading medical experts in myositis virtually all of who are available at the Annual Conference to give presentations and answer one-on-one questions. TMA sponsors local support groups and offers on line presentations that everyone can attend. It offers grants for promising research and fellowships to young researchers. Its newly upgraded website is a fountain of information. TMA’s Board of Directors is comprised of dedicated individuals with varying backgrounds and who volunteer their time. As a myositis patient, I completely appreciate all that TMA does for the myositis community. As a medical professional, I am thankful for the resources available. As a Board member, I am proud to be associated with such fine people and an outstanding organization.

Role:  Board Member
 

Review for The Myositis Association, Alexandria, VA, USA

Rating: 5 stars  

I was diagnosed with sporadic inclusion body myositis in late 2015. I was desperate to find others who had this rare disease and any information I could get my hands on. The Myositis Association filled both roles. The annual patient conference allowed me to meet others and the Medical Advisory Board gave very informational presentations. There is also a state based support group that has been very helpful. Through these connections, I was asked to consider serving on the Board. I enthusiastically agreed and have enjoyed helping others who are were I used to be.

Role:  Board Member
 

Review for The Myositis Association, Alexandria, VA, USA

Rating: 5 stars  

I was diagnosed with Inclusion Body Myositis about 2 years ago. Even as a pharmacist, I had never heard of the disease. I was desperate to learn as much as I could. I stumbled across the Myositis Association and found a wealth of information and support. I was able to contact a state support group and was able to access videos from previous Annual Conferences as well a research papers. I have now attended two of the Annual Conferences and made many new friends in the same boat as I. Membership is free! I highly recommend the Myositis Association to anyone who has myositis, cares for anyone who has it or knows anyone who has it.

Role:  Client Served