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Review for KIDS KICKING CANCER INC, Southfield, MI, USA

Rating: 5 stars  

In 2013 we had the misfortune of having our 8 year old granddaughter diagnosed with rhabdomyosarcoma (an aggressive childhood cancer). The diagnosis came right out of left field-no warning signs,symptoms or anything. Trying to get over the initial shock and process the information rather quickly (the treatment needed to start immediately)-we felt helpless as to where to turn to for information and resources. Alot of the information we got from the hospital was rather cold and clinical. Luckily our pediatric oncologist was a board member for the Kids Kicking Cancer organization and we were able to get a brochure from the hospital. To say that KKC made the difference of our granddaughter surviving is no exaggeration. At the time we made contact with Kids Kicking Cancer-she had whittled away to under 50 lbs. She had stopped eating and stopped caring. Kids Kicking Cancer was founded by Rabbi Goldberg-a doctor,rabbi,black belt and a father who had lost his own daughter to leukemia. His organization is a martial arts therapy program for the kids and a social/support network for their families. The weekly classes teach breathing techniques to help the kids relax when they receive their treatment. The families are a support group for one another-who better to understand what you are going through than someone going through it themselves. There a monthly outings to movies etc. There is free transportation to classes for those without. We celebrate together-we pray together-sometimes we grieve together. The organization started small in Southfield Michigan and now is worldwide. It is completely free to patients and their families. Even when our children are in remission-the kids still come to classes. We have an extended family forever-our Kids Kicking Cancer family. My granddaughter is just about 5 years out from her treatment and we have lifelong friends through the program. This is an awesome Nonprofit group.

Role:  Client Served
 

Review for The Rainbow Connection, Rochester, MI, USA

Rating: 5 stars  

Approximately 4 years ago my then 8 year old granddaughter was diagnosed with rhabdomyosarcoma. This is a very aggressive cancer that starts in your muscles. Three months earlier my husband was diagnosed with throat cancer. I was at my wits end. On top of the uncertainty of both diagnoses-it put us in a terrible financial strain. In talking with another parent in the oncology ward-she recommended Rainbow Connection. It is an organization that grants wish trips to children with life threatening illnesses. I contacted Rainbow and spoke with Nancy-who came out to our home and interviewed our family. The organization-along with their sponsors sent us on an all expense paid trip to Disneyworld. We were put up in a fully furnished condo in a village with other children that were ill. The village had a full service kitchen that was like a restaurant that prepared all our meals-free of charge. We even had an ice cream parlor on premises. We were given tkts to all 3 Disney parks as well as Universal Studios. We were even given spending money. For the children too sick to visit the parks or wheelchair bound children-there were numerous activities throughout the day such as beach parties at the pool.They had a splashpad specifically designed for wheelchairs. They designated certain days as xmas day etc. They had a snow machine and Santa and gave out gifts. Unbelievably friendly courteous staff. The smiles on the childrens faces were wonderful to see. No hassles-no worries. One week away from all the hospitals treatments crying worry and dread. Rainbow Connection also hosts events throughout the year for the children recovering and in remission. My granddaighter is currently in remission. I cannot thabk Rainbow Connection enough.
Cindy Wallace

Role:  Client Served