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rassoum

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Review for The Grace Children's Foundation, New York, NY, USA

Rating: 5 stars  

I got connected to The Grace Children’s Foundation during my quest to help Syrian refugee children. I quickly fell into love with this wonderful organization as its Founder portrays a sincere passion and undying commitment to better the lives of children in need, all over the world. She is a true visionary who has literally committed her life to saving children.

Among other things, I had the pleasure of working with TGCF’s to help obtain life-saving treatment (cardiac denervation surgery) for a 4 year-old Syrian child in the Zaatari refugee camp in Jordan. The child suffered from a rare cardiac condition called Jervell and Lange-Nielsen Syndrome. This is a genetic life-threatening disorder of the heart’s electrical system, which causes a predisposition to dangerous heart rhythms, causing the child to become deaf and mute and suffer from random seizures and heart failure, which could have taken his life. Thanks to the TGCF’s Children’s Resource Exchange Center, we were able to connect this child to a medical mission in Amman who performed this medical procedure immediately, without which, the child would have surely not made it past his 5th birthday like other family members who died of the same condition.

I look forward to working on future endeavors with TGCF including the soon to be launched pilot program that will start off by connecting 100 Syrian children to the medical care they need.

I’m excited that TGCF’s efforts will be further scaled up through their new innovative CREC app which will connect even more children to the resources they need.

Best,
Rasmiya

Role:  Advisor