My Nonprofit Reviews

Since the death of my husband due to cholangiocarcinoma (bile duct cancer), I have donated to and volunteered for the Cholangiocarcinoma Foundation (CCF). In just a brief amount of time, I have watched this truly outstanding organization become a leading U.S., and increasingly international, resource in research education and public awareness for this deadly disease. Just recently, the CCF announced a new partnership with Komodo Health, a first-of-its kind agreement linking a cancer advocacy group with the leading healthcare analytics and insights delivery company to advance the treatment of cholangiocarcinoma. The agreement allows the Cholangiocarcinoma Foundation to access previously inaccessible information, data, and disease-treatment reference points through Komodo Health’s largest, most actionable healthcare map in the U. S. This initiative is just one example of how the Foundation’s focus on research and collaborative partnerships provides tremendous support and hope for both patients and caregivers!

My husband’s diagnosis of bile duct cancer was frightening. We knew nothing about this type of cancer and felt so alone. It did not take us long to learn that little is known about this disease and that a great deal of research is needed for early detection, diagnosis and treatment. Fortunately, we also learned how valuable of a resource the Cholangiocarcinoma Foundation (CCF) is for those whose lives have been touch by this deadly cancer. Whether you are a patient, caregiver, advocate, or medical professional, the CCF offers support, education and collaborative opportunities for everyone! For me, the fact that the CCF keeps its overall focus on finding a cure is crucial as well as comforting.