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Review for Averys Angels Gastroschisis Foundation, Wake Forest, NC, USA

Rating: 5 stars  

"Gastroschisis is a birth defect that causes the intestines to protrude from a hole in the abdomen, typically to the right of the umbilical cord. Occasionally, other organs are involved as well. This must be repaired surgically after birth, although surgery is not always possible immediately and depends on many factors including the amount of bowel outside of the body. While approximately 90% of affected infants survive in industrialized nations with proper medical care, there is still a 10% mortality rate due to complications or related defects and infections ' even with the best medical care." -Averys Angels Gastroschisis Foundation.

Our gastroschisis journey began May 13, 2015. When Silas was born into my own arms, we had a complete surprise! He had his small and large intestines, stomach and liver born outside but still managed full closure at 7 hours old with no organ damage. He spent 22 days at the NICU. Silas had a second surgery at three months old for an umbilical hernia repair. We have been extremely blessed! I want to give the support I didn't know existed with AAGF and bring more research for families affected by gastroschisis!

Role:  General Member of the Public