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Julia_F

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1 reviews

Review for Cystic Fibrosis Foundation Headquarters, Bethesda, MD, USA

Rating: 5 stars  

About seven and a half years ago, I gave birth to a beautiful, blonde baby boy. He was perfect! By this point, we had learned the odds. We knew what we may soon be facing. One in four, that was the chance that our precious first born had been born with the life shortening genetic illness called Cystic Fibrosis. The diagnosis came a few weeks later. I couldn't describe the pain and the fear if I tried. No cure...those words never get easier to hear. How helpless of a feeling to be a new parent and to learn your baby has such a horrible, scary illness and you can't do a thing about it! A few months in, I learned that aside from his daily treatments and pills, there was something I could do. We have participated in the Great Strides for Cystic Fibrosis walk every year since the beginning. We average just over $1,000 a year for the Cystic Fibrosis Foundation from our team, Elijah's CF Busters. We have hope there will be a cure in his lifetime, and we want to help make it happen! You can visit Elijah's FB page at www.facebook.com/65rosesfore, or you may visit his page on the CFF website to donate in his name! I will provide the link to his personal fundraising page. Thank you!! http://fightcf.cff.org/goto/CFBusters

Role:  General Member of the Public