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1 reviews

Review for VHL Alliance, Boston, MA, USA

Rating: 5 stars  

VHL Family Alliance is an amazing organization that has given me the support to fight for my life in many aspects. The support of its staff and volunteers allows many to find the doctors they need. The work of this organization to support researchers to find a cure and to the patients and their families to find support is amazing.

I've personally experienced the results of this organization in...

Medical support and direction. Support in others who have the same disease. This organization has helped open doors that were closed to me.

What I've enjoyed the most about my experience with this nonprofit is...

The community and support

The kinds of staff and volunteers that I met were...

Helpful and encouraging.

If this organization had 10 million bucks, it could...

Support grants to find a cure for this disease and offer more support individuals with or families with VHL.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?


Role:  Board Member & I have learned more than can ever be explained. I have worked with my child to inform others of VHL and how it affects individuals.