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Review for Friends of FSH Research, Kirkland, WA, USA

Rating: 5 stars  

The Pacific Northwest Friends of FSH has raised and distributed funds to increase research in the cause and ultimately the treatment of facioscapulohumeral dystrophy. Through pilot project funding as strategic support of critical research bottlenecks, the Friends of FSH has fostered the development of a large research collaborative group that includes researchers in the pacific northwest as well as national and international FSH researchers. The foundation has made a tremendous impact on developing a path forward in this difficult disease. Tell your story here and help others understand this charity

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About every six months

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Role:  Professional with expertise in this field & Researcher in the field of FSHD.