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Review for The Corneal Dystrophy Foundation, San Jose, CA, USA

Rating: 5 stars  

I had Fuchs' Dystrophy and prior to joining The Corneal Dystrophy Foundation, I had no one who knew about the disease except for my ophthalmologist. After becoming a part of the group, I realized that my ophthalmologist was not current and correct about Fuchs' Dystrophy found my way to a knowledgeable cornea specialist. By then I had blisters on my cornea which complicated the outcome of the overdue DSAEK. Due to complications, I went to one of the top recommended Fuchs' cornea specialists in the US and am now Fuchs' free and my vision is improving rapidly. If I had never joined this great organization, I fear that I would have continued to trust the poor advise I was being given, I would not have been aware of the very best specialists and, I believe, my eyesight would have been significantly compromised. The education, encouragement, and knowledge I received from this group was invaluable. Such small things like how to wash your hair after surgery, were so helpful. I truly believe that anyone in the journey of Fuchs' Dystrophy would benefit greatly from being a member of The Corneal Dystrophy Foundation.

I've personally experienced the results of this organization in...

The most important results for me was the knowledge and encouragement from others who have this rare disease. Reading their stories and following their journey made my journey much easier.

What I've enjoyed the most about my experience with this nonprofit is...

Education, information and sharing about my rare eye disease.

If this organization had 10 million bucks, it could...

1) Help to establish ways to provide continuing information to all eye care professionals about Fuchs' Dystrophy. 2) Find a way to reach out to the many suffering from Fuchs' Dystrophy and aren't aware that help is available.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?


Role:  Client Served & I received valuable information and advice.