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neilmooney

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1 reviews

Review for The Iga Nephropathy Foundation Of America Inc, Wall, NJ, USA

Rating: 4 stars  

I have been involved with Bonnie and IGAN since day one when her son Eddie was diagnosed over 10 years ago, We started this journey in her living room looking at ways we could raise money and to fund the much needed research on IGNA that was severely lacking. Now here we are 10+ years later and as strong as ever: IGAN is a 5013C charity, we are funding research done by Doctors in Alabama, formed additional IGAN Chapters across the country, and doctors from Columbia Hospital taking blood samples at our Annual walk from research One of the really nice things about this is that thru the internet and social medial the 'word' has gotten out across the country and we have connected with other people who have this disease and are now members of Bonnies 'Family' who are working to achieve our same goals and objectives.

Role:  Board Member