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1 reviews

Review for The Corneal Dystrophy Foundation, San Jose, CA, USA

Rating: 4 stars  

My mother was diagnosed with Corneal Dystrophy in 2004 shortly after having both her eyes operated on for cataracts. We had not fully made the connection to her mother’s diagnosis of the same condition, which was diagnosed decades earlier, until reading up on this condition on the Fuchs’ Friends website. I feel indebted to the Fuchs’ Friends website for educating me on Fuchs’ Corneal Dystrophy, providing information on what to expect from this condition and the types of surgery that were available. Mom ultimately had DSAEK surgery with a surgeon that we found on the physician locator. Prior to finding this website, I had not heard of a partial thickness cornea transplant and this website educated me on the types of surgery that were currently available, and what questions should be answered by a surgeon that would potentially be performing surgery. After researching this condition on the Fuchs’ Friends website, I felt knowledgeable enough to ask questions and understand what we were about to experience with surgery and recovery.

I've personally experienced the results of this organization in...

My mother was less scared of going completely blind after having been provided information from this website.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?


Role:  Client Served & I received enough information to feel strong and empowered after my mother's diagnosis of Corneal Dystrophy.