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bartbrown

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1 reviews

Review for Cure AHC- Alternating Hemiplegia of Childhood, Rolesville, NC, USA

Rating: 5 stars  

I first connected with Cure AHC through my granddaughter whose friend in Iceland, Sunna Valdís Sigurðardóttir (see her beautiful photo below), is the only person in Iceland with AHC. AHC helped fund and create Águsta Fanney's AHC documentary, "Human Timebombs," which has raised worldwide awareness of AHC.

Cure AHC has created a global community of families dealing with AHC, raising awareness and research funds for this rare disease at institutions like Duke University.

Through Amazon's "smile.amazon" program, I continue to donate to Cure AHC -- for every purchase I make from Amazon by opening the "smile.amazon.com" page and ordering from there, Amazon donates to my charity of choice -- "Cure AHC Foundation" -- at no cost to me: (https://smile.amazon.com/gp/chpf/about/ref=smi_se_abtpo_r_about_smi).

Cure AHC is among the foremost charities dedicated to finding a cure for Alternating Hemiplegia of Childhood, and they do a fantastic job for children and families dealing with this pernicious and debilitating disease.

If I had to make changes to this organization, I would...

No changes, except MORE DONATIONS!

Was your donation impactful?

Likely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2016

Role:  Donor