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Michelle391

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2 reviews

Review for Worldwide Syringomyelia & Chiari Task Force Inc., Lawrenceville, GA, USA

Rating: 5 stars  

When I was diagnosed with syringomyelia I panicked as I had never heard of it, I googled it and read an article which said the lifespan was around 47,i became a wreck feeling I only had 3 years to live.I decided to pluck up the courage to look on Facebook and came across this amazing group, with the help of Beth ngyen and those integrating made me realise that yes it can be a fight in all senses from pain to finding a good doctor and neuro that understands, yes I'm still without a neuro but without this group and website I would be lost

Role:  General Member of the Public
 

Review for Worldwide Syringomyelia & Chiari Task Force Inc., Lawrenceville, GA, USA

Rating: 5 stars  

An amazing site with toolkits and information that can help sufferers who struggle when specialists don't understand the disease,and always there for you if you have a question.

Role:  General Member of the Public