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Review for Worldwide Syringomyelia & Chiari Task Force Inc., Lawrenceville, GA, USA

Rating: 5 stars  

This organization has done the legwork and put together very useful information packets that I have taken to my doctors. The packets help educate health professionals about my rare disease so that they are better able to understand and help me.
Beth has worked tirelessly to help others who have this rare disorder, in spite of suffering from its debilitating effects herself.

Role:  General Member of the Public