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Rare Genomics Institute

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2 reviews

Review for Global Genes®, Aliso Viejo, CA, USA

Rating: 5 stars  

Thank you for your support of a travel scholarship! We were able to attend your RARE Patient Summit this September, 2017.

Through this event, we were able to learn more about the efforts of not only patient advocacy organizations, but also companies and the patients themselves. Being a virtual non-profit, we are so grateful to be able to learn and connect in person, something we could not have been able to afford to do without this scholarship. Through this attendance, we not only made new key relationships which we are pursuing this year, but we were also able to meet existing collaborators in person finally. The visit also produced a short takeaway which we posted on our Rare Genomics Facebook page and website . Thank you for helping us continue to work!

Role:  Professional with expertise in this field
 

Review for Consano, Portland, OR, USA

Rating: 5 stars  

Molly came to speak at our conference early this year to discuss the amazing work that she does . Her success in funding science and making research patient-centric helps not only the patients, but galvanizes all people to work together. She is a beautiful person that brings such sweet passion while at the same time produces valuable results.

Role:  Professional with expertise in this field