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Kristine21

114 profile views
2 reviews

Review for Global Hydranencephaly Foundation, Seabeck, WA, USA

Rating: 5 stars  

Global Hydranencephaly Foundation has provided invaluable information and insight into my son’s diagnosis, and offered hope for his prognosis and quality of life. The foundation has also provided an unfaltering, steady network of support that has been a priceless resource throughout this journey.

Role:  Client Served
 

Review for We Are RARE, Orlando, FL, USA

Rating: 5 stars  

This non-profit has been a beacon of hope and support. The information provided and support offered were pivotal in learning about and coping with my son's diagnosis of Schizencephaly. They are compassionate, responsive, and insightful. I'm now fortunate enough to be part of the team and to provide support for families coping with a diagnosis of severe Schizencephaly. Fantastic organization!

Role:  Board Member