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Eric96

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2 reviews

Review for Clusterbusters Inc, Richmond , VA, USA

Rating: 5 stars  

I was a refractory chronic clusterhead for over a decade. I was able to function albeit in agony several times a day. During that time I had been following the organization and participated in online community support but had not attended a conference. This organization saved my life truly giving further support that was needed along with information that helped bring me to a managed state.
For the past 3 years I have gone from 6-8 attacks daily during peak periods and 2-3 during low periods to averaging 1 bad attack per month. This wouldn’t have happened with out CB!! In addition my other headache types have been manageable. An amazing bonus!!
Their work in the community is astounding. Bringing forth not only citizen science but has opened the eyes to pharmaceutical companies the need for having treatments just for us and has done tremendous work advocating on Capitol Hill.
Our community of “sufferers” is truly blessed.

Role:  Client Served
 

Review for Clusterbusters Inc, Richmond , VA, USA

Rating: 5 stars  

Every year the organization gathers for conferences that are comprised of the leading neurologists, advocates, researchers, pharmaceutical companies, and patients. This is the largest and most effective patient advocacy group that is literally saving lives. While many groups offer good wholesome therapy, this organization's drive to not only lift people up out of the depths of chronic pain hello I that of functioning, thriving, pain free individuals is beyond praiseworthy.
Aligning themselves with other organization's to advocate not only for our condition but for other related disorders puts it on another level of nobility.
It has and continues to be a life saver

Role:  General Member of the Public