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ccspagan

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Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

My son was diagnosed with Barth syndrome in February of 2016. Barth Syndrome Foundation provided invaluable information to help navigate the struggles associated with this rare genetic disorder. We've met several families through BSF that share my son's diagnosis and have been able to learn even more. Barth Syndrome Foundation truly is, a great nonprofit...

Role:  General Member of the Public