My Nonprofit Reviews

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terhunek1

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2 reviews

Review for Cornelia de Lange Syndrome Foundation, Inc., Avon, CT, USA

Rating: 5 stars  

I have been involved with the CdLS Foundation as a professional, and as a CdLS sibling. I am continually amazed by the authentic and high quality work and support this Foundation provides. Their commitment is first and foremost to CdLS families, and this commitment never waivers. The Foundation staff are truly dedicated, and continually provide services that are relevant to the evolving needs of CdLS families, while supporting ongoing CdLS research. The CdLS Foundation is recognized globally, and frequently serves as the model of CdLS support and outreach. Being a part of the CdLS Foundation has been a true privilege for me.

Role:  Board Member
 

Review for Cornelia de Lange Syndrome Foundation, Inc., Avon, CT, USA

Rating: 5 stars  

The CdLS Foundation is the only organization of its kind, providing support, education, and resources for families and professionals providing care for someone with Cornelia de Lange Syndrome. The Foundations is organized, and highly effective in meeting the needs of CdLS caregivers from around the world.

Role:  Board Member