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Review for Chordoma Foundation, Durham, NC, USA

Rating: 5 stars  

Chordoma is an extremely rare cancer that can affect people at any age. But because it's so rare, it can be very difficult to get a correct diagnosis and even more difficult to access appropriate treatment. At present there is no cure and treatment options have been limited. This is where the Foundation comes in. As the parent of a young chordoma patient, I depend on the Foundation for vital information. And because I want my daughter to have a long life, I depend on the Foundation to spearhead research. For a small organization, they have an incredible record of bringing together researchers and physicians from around the world to uncover the mechanisms of the disease, learn what treatment works, and strive for a cure. Additionally, the Foundation provides a range of support services for all those affected by chordoma.

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