My Nonprofit Reviews
Review for Angel Flight Soars, Inc., Atlanta, GA, USA
My son Adam was diagnosed with Neurofibromatosis prior to his first birthday. Today, he is 16 years old. Neurofibromatosis has caused disabling and debilitating tumors to grow on Adam’s, retina, spine and all over his long arm and leg bones. Adam has endured multiple surgeries, broken bones, vision loss, hearing loss, developmental delays, decreased respiratory function, severe scoliosis, and is unable to eat without difficulty.
In January of 2015, a large cervicothoracic plexiform neurofibroma tumor was discovered on Adam’s cervical spine. The tumor made it difficult for Adam to breathe easily, jeopardized his coronary vessels, and caused a severe spinal deformity. Doctors in home city Charlotte, NC referred Adam to a surgeon in Baltimore, MD experienced in spinal deformities. Without surgery Adam would have continued to deteriorate. It would have been very difficult for our family to provide transportation to Baltimore. It would have also been very difficult for Adam to travel 9 hours via car. Angel Flight made it possible for Adam to receive the miracle surgery he needed to save his life.
The Angel Flight staff and volunteer pilots were a true blessing to our family. We will forever be grateful to them for giving Adam the gift of Angel Flight transportation, and the ability to improve his quality of life.