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peggylussier

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2 reviews

Review for Lmsarcoma Direct Research Foundation, Tulsa, OK, USA

Rating: 5 stars  

This site is invaluable to those with Leiomyosarcoma. It is full of information and hope. Anyone diagnosed with a rare disease finds themselves alone with miserable statistics. A site like this is a lifesaver.

Role:  Client Served
 

Review for Lmsarcoma Direct Research Foundation, Tulsa, OK, USA

Rating: 5 stars  

I was diagnosed with leiomyosarcoma. I couldn't pronounce the word let alone know what it was. My oncologist kept looking down at the report & back to me with terrified eyes. I heard RARE, AGGRESSIVE, FAST GROWING. The Internet was terrifying. Statistics were low and there seemed not much hope. But then I found an online group that offered support, encouragement, recommendations, hope...a light in a dismal place. LMSdr has been my rock. This rare cancer gets very little funding or recognition like other well known cancers. All donations to LMSdr go directly to research on our own cancer to help find better treatments and eventually a cure. The logo is "Working not Wishing".

Role:  General Member of the Public