My Nonprofit Reviews
Review for Chromosome Disorder Outreach, Inc., Boca Raton, FL, USA
My son and 2 grandchildren were diagnosed with a rare chromosome deletion 2 years ago. This sent our world into chaos, trying to find any information to understand what this was about and what to expect. It was only at my insistence that my 6yo grandson was diagnosed, through a pediatrician, as he was showing definite signs of autism. We eventually got results of genetic testing in the mail and had to wait 8months for a genetic counselling.
It felt like the longest 8 months of my life, as I searched and searched for information.
Am so grateful to the chromosome disorder outreach for the information and support they provide to families in similar situations. I cried with relief when I came across the website, just to know there was others out there going through the same torment of feeling in the dark with very little support. Thank you for just being there! L.Robinson