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Review for Usher Syndrome Coalition, Maynard, MA, USA

Rating: 5 stars  

This is a non-profit that knows how to make change. 10 years ago before the coalition existed, I was told there was no cure for my disorder. Because of their efforts to accelerate research, doctors are now telling me there will be a cure in my lifetime. Their strength lies in their vision and sticking to that vision through a road map and collaboration with families, researchers and individuals affected by Usher syndrome.

Role:  Board Member