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AngelHarp

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1 reviews

Review for International Essential Tremor Foundation, Overland Park, KS, USA

Rating: 5 stars  

I was diagnosed with "benign familial tremor", now known as Essential Tremor (ET) in my 20s, although it had manifested earlier. All through my life I'd hidden it. When a support group sponsored by the IETF started within 5 miles of my house when I was in my late 50s, I was elated that there were other folks with ET and excited to learn more about it. So, I volunteered to be co-leader of the group. The materials and support provided by IETF to the local support groups are excellent. It was through the IETF and the support group that I met doctors and other people and learned enough to be confident enough to go through with Deep Brain Surgery (DBS) or brain pacemaker surgery this past month. The DBS has made a tremendous difference for the tremor on my left side. I will be talking to folks next month about my experience and the IETF volunteer coordinator is sending out a flyer for me to folks in my area.

Role:  Volunteer