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pick53

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Review for International Essential Tremor Foundation, Overland Park, KS, USA

Rating: 5 stars  

The IETF has made living with ET much easier for me. I was diagnosed when I was about 35 but I had noticed this condition earlier and also had seen it in my Dad. I have 3 brothers and 2 sisters. All but one has ET. For me, it has progressed as I've aged and really only hinders me when eating, drinking, and personal grooming. However, due to the nature of this condition, when I have to speak in front of a group of people or play my guitar in public it can become a nightmare. The IETF through literature and posters they've made available have enabled me to increase awareness in my church, at my workplace, and in my circle of friends and family. This has limited the amount of questions I get asking me "why are you so nervous" or "why do you shake so much". Because of the IETF I have been able to consider myself "normal" and this has helped boost my confidence. This foundation has been a Godsend and I look forward to seeing more of what they can accomplish. Al Johnson

Role:  General Member of the Public