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Michelle_W

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1 reviews

Review for Muscular Dystrophy Association, Tucson, AZ, USA

Rating: 5 stars  

CMT: A TITLE, A LIFESTYLE
Having CMT was not just a diagnosis for my but also for my kids, who also carry this diagnosis. We had to learn how to not only wear a title that no one knew about but to also live a life style that would change our lives forever. We could have given up and allowed circumstances to defeat us but our local MDA office and personnel came to our rescue. This is when we knew that their giving to us could only mean that our giving to others would result in a circle of love and support that could only produce healing and cure! Thus, our giving became our motivation to live, not just for ourselves but for others. Finding a place to learn more and grow with others like ourselves from the Hereditary Neuropathy Foundation was a heaven send. Having teens that do not accept a chronic illness decide to embrace a movement to help other like themselves and accept what can not be changed is a miracle by itself. Now we have a Giving story to tell and share with our friend and neighbors. Our giving cultivates a desire to go on and see what the end will bring, if not for us then maybe for someone else.

Role:  General Member of the Public