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amywilson82

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3 reviews

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

Awesome group of people who are dedicated to new treatments and support for each and every patient and family. Small but mighty group! If I had to live this life without them it would be devastating
#teambarth

Role:  Client Served
 

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

This foundation goes over and beyond for the many families affected by this tragic and horrific syndrome. From advice to messages of faith to keep our spirits up in the darkest hours, to the great medical and family conference. We are a small but mighty group. I wouldn't trade this foundation for ANY OTHER!

Role:  Client Served
 

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

The people with the foundation go far beyond what is asked. Not only do they do their jobs, they become family. They love & care about each one of the families affected by this disease.
Cannot thank them enough!!!

Role:  Client Served