My Nonprofit Reviews
Review for Amyloidosis Support Group, Inc., Wood Dale, IL, USA
I was diagnosed with Amyloidosis [which is a very rare form of cancer that can attack any or all of your organs and available spaces] in 2013 as the result of a annual health checkup. It was a very lonely feeling because while the clinic where I was diagnosed did know something about it they did not have any patient experience with this. After I moved my treatment to MD Anderson Cancer Center I continued my habitual Internet browsing and became aware of this group and that it held meetings in Dallas, TX. I went to a meeting and found a) others with similar problems, b) a printed piece of literature about this, and c) most importantly other folks who just wanted to make sure that it is not "JUST ME!".
Be assured that it is not "just me" and that there is medical research progress has resulted in new drugs and so, "Help is on the way!" and it is discussed at each and every meeting you will attend.
There will be meetings of this group in Houston at MD Anderson Hospital's conference center starting September 2016.