My Nonprofit Reviews

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liz0625

103 profile views
3 reviews

Review for Chromosome 18 Registry and Research Society, San Antonio, TX, USA

Rating: 5 stars  

As a parent of a child with an incredibly rare disease I just can’t say enough about chromosome 18 registry and research society. Just when you think there is no one else that can imagine what you’re going through your introduced to so many families that can support you and help you. I found this organization so incredible that I went from a client to now an active board member and I want to make my positive experience the same sort of experience that others can have. My daughter Charlotte was born with Tetrasomy 18p, a very rare genetic anomaly. But I have found such a wonderful extended family within the Chromosome 18 Registry group. Enough that I now fully support the organization through being a board member.

Role:  Board Member
 

Review for Chromosome 18 Registry and Research Society, San Antonio, TX, USA

Rating: 5 stars  

A wonderful organization that supports all individuals that are affected in any way by a Chromosome 18 abnormalities.

Role:  Client Served
 

Review for Chromosome 18 Registry and Research Society, San Antonio, TX, USA

Rating: 5 stars  

With so few people affected with Chromosome 18 issues it is so wonderful that there is an organization that is dedicated to improving the lives of anyone with a Chromosome 18 issue. They do ground breaking research in areas that no one else is doing research and they strive to help our loved ones live healthy, happy and full lives.

Role:  Client Served