My Nonprofit Reviews

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2 reviews

Review for Chromosome Disorder Outreach, Inc., Boca Raton, FL, USA

Rating: 4 stars  

They are the only US organization that cares about our children's condition. They are a source of info for those of us who must advocate for our children in a medical environment geared to treating "standard" issues with normal children.

Role:  Client Served
 

Review for Chromosome Disorder Outreach, Inc., Boca Raton, FL, USA

Rating: 5 stars  

When you learn that your child has a chromosome disorder that is shared by only 20 or so other children in the world and this condition is considered "undiagnosed" because the doctors do not know anything about it, you are bewildered. CDO was a godsend because it connected us with parents of similarly affected children. It was in talking with these parents that we were able to manage our child's healthcare. The doctors simply have no experience in dealing with children with "undiagnosed" chromosome disorders. I do not know what we would have done without CDO.

Role:  Client Served