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Branagh

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3 reviews

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

As I’ve said before, an upstanding organization that is truly changing the lives of people affected by Barth Syndrome, both affected individuals and their families. Thankful for their hard work, compassion, and determination.

Role:  Client Served
 

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

Honest, sincere, compassionate, and hopeful group of people. Would not wish the experience of having a loved one with Barth Syndrome, but so very thankful that we have this group in our lives!

Role:  Client Served
 

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

I wouldn't wish a child with health problems on anyone, but I am so thankful that we have the support of the Barth Syndrome Foundation. What an honest, inspiring, compassionate, selfless, professional, and personal organization. I have been nothing but pleased and impressed with every interaction I have had with the Foundation in the past 2 years since our diagnosis. The individual families affected by Barth Syndrome truly make up one united family, lifting each other up when needed, providing advice and experience tastefully and tactfully, rejoicing and grieving together. And the Family and Medical Conference is superb! Amazingly pulled off by a small, but wonderful team running BSF and done so well. Cannot say enough good things about BSF! As parents of a son with Barth Syndrome, we so value and appreciate the Foundation for so many reasons.

Role:  Client Served