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Review for Lymphatic Education & Research Network, New York, NY, USA

Rating: 5 stars  

Four years after having surgery to cure cancer in 2004, I discovered I had swelling crawling up my left leg. It began in my toes, and inched up to my thigh over the course of a few years. My doctors were stumped. One even suggested I was just "getting old." In 2011, I discovered my disease has a name -- lymphedema. Finding the Lymphatic Education & Research Network (LE&RN) was just what I needed because up until that point, I didn't know much about lymphedema at all, and I was forced to do my own research. But LE&RN made researching so much easier, with its pages upon pages of information, symposiums and personal stories from people who also suffer from the disease. I was so impressed with them that in 2014, I decided that instead of having a bridal shower, I would hold a LE&RN fundraiser, raising $3,000! My husband and I then spend our honeymoon participating in the Walk for Lymphedema in NYC, a LE&RN fundraiser, and walked over the Brooklyn Bridge with others who also suffer from the disease or care for family members who do. LE&RN is such a great tool for those newly diagnosed with lymphedema, and it's a great resource for all lymphedema patients to find new information and support. Thank you, LE&RN!

Role:  Volunteer