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Mia_4

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1 reviews

Review for Hydrocephalus Association, Bethesda, MD, USA

Rating: 5 stars  

I am a volunteer with the Hydrocephalus Association (HA) and also a mom of a 12 year old boy with Hydrocephalus. This is a lifelong journey for us all and each of our kids will have different challenges to face.
The Hydrocephalus Association has been there for me and my family from the beginning. Especially when I received that phone call saying my son had Hydrocephalus. I could not even spell the word. But after calling them to see where to turn, I felt a great comfort to have someone on the other end of the line knowing exactly how I felt and what I was going through. Their support and guidance is amazing you will never feel alone having them just a phone call or email away. The support services offered by the HA is like no other, available by phone, email and all social media outlets. There are also many opportunities for all ages to be involved with the HA, we are very grateful to have them to turn to since the day of my sons diagnosis at 23 months.

Role:  Volunteer