My Nonprofit Reviews

Where to start the story of our son Mark, great doctors and the absolutely wonderful DBAF, is my dilemma. Mark was born on October 18, 1970 and it was one of the most special days in my life. We did not know how important our life's journey with Mark would be. His first Christmas was spent in the hospital for a blood transfusion. After that did not work for long Mark spent 27 days in Boston Children's Hospital which ended in his diagnosis of DBA. After many years of traveling to Boston and New York, many of them for research purposes, He decided to try a new procedure called, for the lack of a better title, a mini bone marrow transplant. He was the first DBA patient to try this and it worked. Even tough he was no longer anemic he always would be a DBA patient. This in turn led to a adorable young girl, who could not have a full bmt, to be cured of her anemia and save her life. Mark was so happy when he got to meet this beautiful child at Point Sebago, Maine at Camp Sunshine put together by the DBAF. From all the support our DBA families get from this wonderful caring foundation has come a close family fighting the fight as one. As a mother of a generation of children who did not know much of this awful blood condition, the knowledge that is now given to the families is priceless. The ability and caring of all the people who give from their hearts, whether is of their time or financial help, our DBA families thank you. I truly believe Mark was on this earth for a mission, to help our DBA families. Though he is no longer with us, the DBAF is and they are continuing the fight that Mark believed in. Please help Mark and the other DBA children by helping the DBAF, a truly caring and wonderful foundation.

Madeleine Lapierre, mother of Mark Lapierre , 10/18/1970-03/14/2013